President of international patient association with a demonstrated history of working in the civil & social organisation industry. Skilled in Marketing Management, Negotiation, Viral Hepatitis, Business Planning, and Coaching.
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My journey in advocacy commenced in 2000 with the establishment of the pioneering diagnostic association, marking the initial steps toward championing the rights and well-being of patients. This foundational effort was soon complemented by the orchestration of various patient-centric events, showcasing a commitment to fostering community, awareness, and support.
The pinnacle of this trajectory was reached in 2018 with the co-founding of ‘Patient in Focus,’ a testament to the dedication to placing patients at the heart of healthcare discussions and decisions. Subsequently, my involvement expanded to include the establishment of the Patient’s Unit, a platform dedicated to amplifying patient voices and experiences.
Moreover, my engagement with organizations like EIT Health, EUPATI, EU-X-CT, and others reflects a commitment to collaborative efforts at both national and international levels. Through these partnerships, the goal is to contribute to advancements in healthcare, patient empowerment, and the overall enhancement of the patient experience.
The journey continues, fueled by a passion for advocacy, a dedication to patient-centered initiatives, and a belief in the transformative power of shared experiences in navigating the complex landscape of healthcare.
In addition to these impactful initiatives, my upcoming blog, Livetmedgigt.dk (Life with arthritis), promises to be a valuable resource and a personal space for sharing insights, experiences, and perspectives on living with certain health conditions.
I’ve been on the journey for many years, som my kvowledge is Top Patient Advocacy.
You can locate me on these platforms:
Patientengagement Synapseconnect.org /Lisbeth-oxholm-snede
Community EIThealth.eu / Lisbeth Oxholm Snede (User 6757526)
On a more personal note, I live in Denmark with my husband over 33 years and our little 12 year old poodle. I am enriched with two wonderful “adult” children and a lovely grandchild.
My spare time is spent playing golf with friends and family. The same can be said for my holidays, where I always try to keep going despite my many multiple diagnoses. I’ve been a patient for many years and have seen a little bit of everything, from old-fashioned paper review to today’s state-of-the-art and often with artificial intelligence (AI) systems.
“I have e!.”
∼ xxxx Director EU Global
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